In the months before November, Melissa began to feel increasingly uneasy about Isaac’s sleep. Though it was difficult to pinpoint, something felt off — and her motherly intuition told her he wasn’t resting well. Only recently has the full extent of the issue come to light.
Already facing the complexities of Wolf Hirschhorn Syndrome and Craniosynostosis, Isaac was showing additional troubling symptoms at night. “He would sweat a lot, stop breathing at times, snore loudly, and toss and turn,” Melissa recalled. While these issues can be linked to his existing conditions, Melissa’s persistent advocacy led to a sleep apnea test.
A few weeks ago, a follow-up appointment confirmed her fears: Isaac was diagnosed with severe sleep apnea.
Though relieved to finally have an answer, Melissa was also heartbroken — yet another battle for Isaac to endure.
To address the issue, doctors recommended a CPAP machine to support his breathing during sleep by keeping his airways open. But this solution comes with its own complications. Isaac has heightened sensory sensitivities and is especially uncomfortable with anything touching his face.
“It’s hard because of his sensory issues. Using the CPAP won’t be easy for him. But we’re confident the medical team will help, and honestly, we don’t have a choice — he needs it,” Melissa said.
Despite the tough road ahead, Isaac is surrounded by unwavering support from his family and care team. With their strength and encouragement, he’ll continue to fight for the rest he needs.
Melissa concludes with a heartfelt plea: “Wish us luck.”
